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Down Syndrome Pathway
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What to Expect
Antenatal Pathway
Neonatal Pathway
Prior to discharge
First Few Weeks
Early Years
Pre-school
The School-age years
Fourteen to Adult
Adulthood
Appendices
Thankyous and acknowledgements
List of appendices
01: Referral form & notes
02: Support groups
03: Paediatric complex needs
04: Haematology guidance
05:Homecare and Community paediatric nurses
06: Nutrition and dietetics service
07: Infographic: Top tips for triaging and treating kids with DS
08: DS specific Growth charts and Inserts for red book
09 - Early Years SEND Advisor for Down Syndrome - Parent’s letter
10: Breastfeeding Support
11: A letter from a Barnet parent
12: Unusual or recurrent infections
13: Sleep & sleep disorders
14: Constipation, Coeliac screening
15A: Neurophysiology referral form and melatonin guidance
15B: Infantile Spasms (IS)
16: Criteria for RSV prophylaxis
17: 0-25 Children’s Disability Team, Children's Social care
18: Neonatal guidelines from DSMIG (2018-9)
19: Paediatric physiotherapy services
20: Thyroid guidance (updated 2020)
21: Atlanto-axial instability
22: Dental information and referral form
23: Hearing and audiology pathway
24: Ophthalmology pathway
25: Musculoskeletal complications and Referral form for Orthotics
26: The SCERTS® Model:
26A: Communication
26B: - Oromotor exercises – MDT (multidisciplinary) approach
27: CAMHS services, SCAN and Referral forms
28: Occupational therapy (OT) services
29: School nursing referral information
30: Fluid and food thickeners - information
31: Education
32: Learning Disabilities Directed Enhanced Services
33: Managing behaviour
34A: Nutrition and supplementation - including vitamin D
34B: Nutrivene- D and UK perspective
34C: Vitamin D
35: Sports, clubs, groups, days out
36: Sex & Relationships Education
37: ILD Team in Barnet
38: Transition Resources
39: Health checklists for people with learning disability
40: Diabetes and Down Syndrome
41: Government policy relevant to SEN and Down Syndrome
42: Additional diagnoses
43: Down Syndrome Checklists
44: Acute presentations to A & E - in Down Syndrome
45: Making visits to hospitals easier - resources
46: Decision making, mental capacity act (MCA), Learning Disability Register
Contact Us
Down Syndrome Pathway
Home
What to Expect
Antenatal Pathway
Neonatal Pathway
Prior to discharge
First Few Weeks
Early Years
Pre-school
The School-age years
Fourteen to Adult
Adulthood
Appendices
Thankyous and acknowledgements
List of appendices
01: Referral form & notes
02: Support groups
03: Paediatric complex needs
04: Haematology guidance
05:Homecare and Community paediatric nurses
06: Nutrition and dietetics service
07: Infographic: Top tips for triaging and treating kids with DS
08: DS specific Growth charts and Inserts for red book
09 - Early Years SEND Advisor for Down Syndrome - Parent’s letter
10: Breastfeeding Support
11: A letter from a Barnet parent
12: Unusual or recurrent infections
13: Sleep & sleep disorders
14: Constipation, Coeliac screening
15A: Neurophysiology referral form and melatonin guidance
15B: Infantile Spasms (IS)
16: Criteria for RSV prophylaxis
17: 0-25 Children’s Disability Team, Children's Social care
18: Neonatal guidelines from DSMIG (2018-9)
19: Paediatric physiotherapy services
20: Thyroid guidance (updated 2020)
21: Atlanto-axial instability
22: Dental information and referral form
23: Hearing and audiology pathway
24: Ophthalmology pathway
25: Musculoskeletal complications and Referral form for Orthotics
26: The SCERTS® Model:
26A: Communication
26B: - Oromotor exercises – MDT (multidisciplinary) approach
27: CAMHS services, SCAN and Referral forms
28: Occupational therapy (OT) services
29: School nursing referral information
30: Fluid and food thickeners - information
31: Education
32: Learning Disabilities Directed Enhanced Services
33: Managing behaviour
34A: Nutrition and supplementation - including vitamin D
34B: Nutrivene- D and UK perspective
34C: Vitamin D
35: Sports, clubs, groups, days out
36: Sex & Relationships Education
37: ILD Team in Barnet
38: Transition Resources
39: Health checklists for people with learning disability
40: Diabetes and Down Syndrome
41: Government policy relevant to SEN and Down Syndrome
42: Additional diagnoses
43: Down Syndrome Checklists
44: Acute presentations to A & E - in Down Syndrome
45: Making visits to hospitals easier - resources
46: Decision making, mental capacity act (MCA), Learning Disability Register
Contact Us
Home
Folder: What to Expect
Back
Antenatal Pathway
Neonatal Pathway
Prior to discharge
First Few Weeks
Early Years
Pre-school
The School-age years
Fourteen to Adult
Adulthood
Folder: Appendices
Back
Thankyous and acknowledgements
List of appendices
01: Referral form & notes
02: Support groups
03: Paediatric complex needs
04: Haematology guidance
05:Homecare and Community paediatric nurses
06: Nutrition and dietetics service
07: Infographic: Top tips for triaging and treating kids with DS
08: DS specific Growth charts and Inserts for red book
09 - Early Years SEND Advisor for Down Syndrome - Parent’s letter
10: Breastfeeding Support
11: A letter from a Barnet parent
12: Unusual or recurrent infections
13: Sleep & sleep disorders
14: Constipation, Coeliac screening
15A: Neurophysiology referral form and melatonin guidance
15B: Infantile Spasms (IS)
16: Criteria for RSV prophylaxis
17: 0-25 Children’s Disability Team, Children's Social care
18: Neonatal guidelines from DSMIG (2018-9)
19: Paediatric physiotherapy services
20: Thyroid guidance (updated 2020)
21: Atlanto-axial instability
22: Dental information and referral form
23: Hearing and audiology pathway
24: Ophthalmology pathway
25: Musculoskeletal complications and Referral form for Orthotics
26: The SCERTS® Model:
26A: Communication
26B: - Oromotor exercises – MDT (multidisciplinary) approach
27: CAMHS services, SCAN and Referral forms
28: Occupational therapy (OT) services
29: School nursing referral information
30: Fluid and food thickeners - information
31: Education
32: Learning Disabilities Directed Enhanced Services
33: Managing behaviour
34A: Nutrition and supplementation - including vitamin D
34B: Nutrivene- D and UK perspective
34C: Vitamin D
35: Sports, clubs, groups, days out
36: Sex & Relationships Education
37: ILD Team in Barnet
38: Transition Resources
39: Health checklists for people with learning disability
40: Diabetes and Down Syndrome
41: Government policy relevant to SEN and Down Syndrome
42: Additional diagnoses
43: Down Syndrome Checklists
44: Acute presentations to A & E - in Down Syndrome
45: Making visits to hospitals easier - resources
46: Decision making, mental capacity act (MCA), Learning Disability Register
Contact Us

Appendix 18 – Neonatal guidelines from DSMIG (2018-9)

https://www.dsmig.org.uk/wp-content/uploads/2019/01/Neonatal-Guidelines-amended-7-1-18-NB-edit-26.9.18-new-address-2019.pdf