Appendix: Resources for Families and Professionals

1. Resources for Professionals

  • Down Syndrome Medical Interest Group (DSMIG): National group offering guidance and training for clinicians.
    Visit DSMIG

  • DSA – “Tell it Right, Start it Right” Campaign: Training for delivering a T21 diagnosis.
    Access Training

  • National Down Syndrome Policy Group (NDSPG): Promotes inclusion and policy change.
    Visit NDSPG

  • Makaton Charity: Training and resources for professionals and families.
    Visit Makaton

2. Information and Support for Families

National Organisations:

Health and Medical Support:

  • Down’s Heart Group: Support for heart conditions.

  • International Mosaic Down Syndrome Association (IMDSA): Resources for mosaic Down syndrome. Visit IMDSA

Financial and Benefits Support:

3. Local Barnet Organisations

4. Support Groups (UK and Online Communities)

5. Mental Health Support for Parent Carers

6. Additional Parent and Carer Resources

  • Care for the Family – Positive Parenting Courses: Workshops and online courses. Visit Care for the Family

  • SNAP Charity (Special Needs and Parents): Family support and a useful resource directory. Visit SNAP

  • Cerebra: Supports families of children with brain conditions. Visit Cerebra

  • Newlife Charity: Provides essential equipment for disabled children. Visit Newlife

  • Caldwell Children: Funds therapies and treatments for disabled children. Visit Caldwell Children

  • Homestart Barnet: Home-visiting volunteer support for families. Visit Homestart Barnet

  • ADDISS (ADHD Information and Support): ADHD resources and parent groups. Visit ADDISS

  • SENDIASS Barnet: Free, impartial advice for parents regarding EHCPs and SEND processes.
    Visit SENDIASS